About
Our charity is dedicated to raising awareness of X-linked Adrenoleukodystrophy (ALD) and Addison's disease (Adrenal insufficiency), and advocating for ALD newborn screening. We strive to obtain a cure for these rare diseases by fundraising for research. We understand the emotional and financial struggles faced by those affected by these diseases, and our mission is to support affected families in every possible way.
Our charity was founded by a group of individuals who have been personally affected by ALD and Addison's disease, and who are committed to making a difference in the lives of others. Through our efforts, we hope to raise awareness about these rare diseases, increase funding for research, and provide support for affected families.
We believe that together, we can make a real difference in the fight against ALD and Addison's disease. Whether you're affected by these diseases yourself, know someone who is, or just want to help make a difference, there are many ways to get involved with our charity. From volunteering, fundraising and spreading awareness to donating, any form of support is appreciated and goes a long way in making a real impact on the lives of those affected by these diseases.
"Every child deserves a childhood full of love, care, and laughter. Let's come together to brighten their future and make the world a kinder place, one child at a time."
Our Mission
Our mission is to raise awareness of X-linked Adrenoleukodystrophy (ALD) and Addison’s disease (Adrenal insufficiency) and advocate for ALD newborn screening. We strive to obtain cure from the disease by fundraising for ALD research. We are committed to help and support affected families emotionally and financially.
Our Vision
Our vision at ALD Hope is a future where every individual and family affected by adrenoleukodystrophy (ALD) and adrenal insufficiency (AI) has access to the care and support they need to live full and healthy lives. We envision a world where early detection, improved treatments, and ongoing research efforts have resulted in better outcomes and improved quality of life for those affected by these rare and complex disorders. Through our advocacy and support efforts, we strive to create a community of hope and resilience, empowering individuals and families to face the challenges of ALD and AI with courage and determination.