Our Goals
Awareness
To raise awareness of Adrenoleukodystrophy (ALD) and Addison's disease, and to promote greater understanding and support for individuals and families affected by these conditions.
Finance
To provide financial assistance to individuals and families affected by ALD and Addison's disease, including assistance with medical bills, travel expenses, and other costs associated with managing the conditions.
Education
To provide educational resources and materials on ALD and Addison's disease, including information on symptoms, diagnosis, treatment options, and available support services.
Organize
To organize and facilitate support groups for patients and families affected by ALD and Addison's disease, providing a safe and supportive environment for individuals to share their experiences, exchange information and advice, and receive emotional support from others who are going through similar challenges.
Advocate
To advocate for newborn screening programs for ALD and Addison's disease, which can help to detect the conditions early and provide timely interventions that can prevent or mitigate the onset of symptoms.
Collaborate
To collaborate with medical professionals and researchers to advance understanding of ALD and Addison's disease, and to develop more effective treatments and interventions.
